The danger and frustration of DEPRESSION

A friend of mine posted this entry on her blog about how frustrating it is to have depression in the States (in part as a reaction to the Colorado movie theatre shooting recently) and how hard it is to actually get the help you need to stop the negative cycle spinning. She related a tweet that stated it’s easier to get a gun than a therapist in the states. That says a lot.

But that experience isn’t exclusive to the States. It happens here in Canada, too. When I was depressed, I had to struggle to go to the doctor. I had to struggle to get help that came in more than a prescription for a pill. I needed no-cost therapy and it was hard to wait for it to become available. Because, even though we have universal health here, it doesn’t often cover psychologists and therapy for depression. Or coverage is limited to just a few appointments.

Given how prevalent depression is, I find myself wondering why that is. If I can go to a doctor and get help for a sprained wrist, a cut on my knee, an  ear ache, then why can’t I get access to decent help for depression? It’s nuts. But then I sat back and thought about it. Perhaps it’s because so much of the medical system is still working on the male medical model, is still patriarchal in it’s business model and still wants to pretend depression doesn’t exist. Back in the last century men didn’t acknowledge their depression. I don’t know if that’s improved any in 2012.

I’ve battled with depression again in the past year. It was a hard road going back to work after 2 years away. A lot had changed. My work situation was 3 times more busy, management was more inaccessible and uncaring about work load and stress. Home life got more chaotic and F began daycare for the first time, and C started full day school and after school care. A sh1tload of transition. C had a hard time and there was a lot of stress in the home. We had to put her on an anxiety med to help her cope and be less controlling at home. It was a hard choice to make. She still wasn’t sleeping through the night so I was up once or twice a night with her and working full time. I was beyond exhausted. I began making mistakes at work, then got told by management that I was letting my honmelife interfere with my job.

I felt I needed help so I reached out to my family doc. He gave me  a list of groups that only happened during daytime hours. I couldn’t attend any of that. I had a referal call from a mental health nurse. She listened to me, then after offering the same things my doc had, told me there wasn’t much she could do to help. I tried to access help through my workplace medical assistance. They connected me with a counselor who met with me through email. Yeah. Email. Not at all helpful. When do I even have time to read an email that’s gut-wrenching and respond to it at work or at home?! I have a more-stressful-than-most home life because of C’s autism. It’s hard for her to deal with things and vis a vis, it’s hard for us as a result. We have to do things differently. Nothing is spontaneous. We shy away from social activities, play dates, having visitors, etc. because of the fall out the next day that invariably happens. I’ve been told that autism can be isolating and I really do believe that. In addition, we live in a small town outside a smallish city. In the city there are support groups parents can attend. Out here? Nope. Meetings in the city are often in evenings for dads or during the day for moms because the assumption is that families with a kid on the spectrum have moms who stay at home. Or something. So, even if I could drive in, I wouldn’t because I’d have to miss bedtime which is not a time that can be messed with in our house. For obvious reasons. I do get some support online. But it’s hard to really work on things in that venue. Ah well. I don’t want to complain about my kid. This is not about that. It’s about the fact that depression in parents of kids with special needs is higher than in typical families. And depression is largely unsupported for those parents.

So, I struggled through it on my own. Well, with P’s help mostly. I still have hard days when things seem to be just more than I can handle. But the kids are doing pretty well this summer. We’ve got supports in place for C and I’m working on a more regular set of play dates for F since he really REALLY needs social interaction. I’m enjoying, most of all, being away from work for 2 months. Away from all that invented stress and stupidity. Just the stress at home is manageable. When I go back in the fall, I’m going to work hard to keep things in check at work so I don’t get overwhelmed again. But it will be more transition for the kids. F is going to be in a new daycare and C will have her usual hard time adapting to school again. We’ll get through it. We’ll have to.

Helen is off on a big adventure

And poor Dad’s very worried for her. I am, too. But I’m excited for her as well. She’s riding her bike by herself down the US West Coast from Oregon to San Francisco. I think it’s totally amazing. There’s no way I could do something like that. Okay.There’s also no way I’d want to. But wow. What a huge adventure she’s embarking on. She leaves this Saturday. I will send her off with a big Bon Voyage and a toast in her honor. And I will wait anxiously for her first installment. For every one.

I can’t wait to see the pictures and hear the stories. I’m choosing to believe things will go wonderfully for her. Because why worry when you have no control over what somebody else chooses for themselves? Celebrate them instead. It’s so much less stressful!

Things

Briefly, a list:

  • Patric is coming home this afternoon. Yay! We’ve missed him!
  • Kids have been GREAT while Papa was gone. Yay kids!
  • Nana was a life-saver. Nana is ALWAYS a life-saver.
  • Board back-and-forth over what to call our curriculum is annoying
  • Work is pretty low key at the moment. Good for energy. Bad for motivation.
  • Got to connect with Laura this week. Hooray! It’s nearly impossible for 2 working moms with little kids to talk. Seriously.

Connections

Yay! Today I connected at long last with a mom I’ve known for years through a mutual friend. She has a son on the spectrum and he’s in Carys’ class. Yeah. You’d think we’d have been able to connect sooner than 8 months into the school year. But life is complicated.

Anyway, we had coffee today and it was really a great experience. I enjoy her company. It’s great to hear how her son’s experience of Autism is so different but yet oddly similar to what Carys deals with. They’re so different in how they express it, but at the core a lot of it is the same. Especially the ever-challenging social piece. So, we’re having coffee next week and looking into the possibility of getting the kids together for a facilitated play date in the future. We – as many parents of kids with Autisim have come to learn – will be taking it small step by small step.

Learning to accept the meltdowns

I came across a blog entry by a mom with Asperger’s Syndrome who is parenting children on the spectrum. She talked specifically in this entry about what happens for her when she has a meltdown and what it actually feels like in the moment. I was really happy to read it because it helped me finally begin to understand what happens for Carys when she melts down. Specifically, this poster said:

My heart feels like it’s beating very hard and being squeezed at the same time. I feel nauseous and overwhelming fear. I’m very sad, confused, scared, and lost. I scream but I’m not hearing my own words and I don’t know if they make sense. I am shaking uncontrollably, I can’t stop it. I’m crying inside, sobbing, but tears aren’t falling as much as I expect them to. I feel alone and like the ones I have come to trust the most have abandoned me. Whether it’s true or not is another story altogether. This is how I FEEL, though, in the moment of a meltdown.

She also said:

When your child is in a meltdown, give them space to have their meltdown, but let them know you’re there. Today, my husband stood in the bathroom with me while I cried and sobbed in a pile on the shower floor. He seemed kind of lost and unsure of what to do. Every once in awhile he’d say something, reminding me that he was still there. That’s all I needed. And a hug. A good, long hug.

A few days after a meltdown, ask your child to explain how they feel. Help them identify feelings they experience. Draw them out by asking a lot of WHY questions, and HOW. Ask them if they can feel a meltdown coming and ask how you can help next time.

These words were just so important for me to read and ponder. I’ve always tried to get Carys to stop, thinking that she had to be snapped out of it. I’m learning that the meltdown itself is an outlet for stress or anxiety or whatever it is that has caused the buildup to be so bad as to need this release. I need to let it happen. To affirm for her that I’m there, I love her and it will end.Then afterwards, to just keep right on loving her and help her move on.

A lot of the commenters have Asperger’s or kids on the spectrum and one thing they talked about is guilt, remorse and feeling badly for having the meltdown. I see this in Carys and it breaks my heart every time. Afterwards, she knows she’s lost control. She always is very apologetic and I can tell she’s beating herself up. I need to work really hard on helping her find safe places to have the meltdowns and let her know it’s okay. That it’s part of who she is and that no one in our family will judge her harshly because she needs to do this at times in order to keep coping with her life.

The visit, Easter, and more.

My parents have been visiting since near the end of March. Staying in the condo suite in Evie and Ralph’s building. Spending the week doing their own thing and then seeing us one day out of each weekend. We’ve had 3 weekends together and they’ve been wonderful. Just enough time so that everyone gets to enjoy each other but nobody gets too overwhelmed by the tornatoes that are my children. They ARE tornadoes.

We had Easter dinner together this past Sunday. A lovely stuffed pork loin that I must say turned out well. Fennel, carrots and celery sauteed together and mashed potatoes on teh side. Yum.

Easter chocolate was hunted for and found. Big kinder surprise eggs were given as well. Very happy kids.

It was a great day. It’s been a great visit and I’m a bit sad to see them go. Happier knowing I’ll see them in August.

Name changes

We had a wonderful visit with my parents. I’m going to stop calling Carmen my step-mom. I’ll still call her Carmen because I’ve been doing it for 25 years now and it would be strange not to. But she’s been more of a mom to me than my own mother. She’s given me so much my mother couldn’t give. So, she’s my mom. There. That felt good.

Okay.

Up to now, Carmen has wanted the grandchildren to call her Grandmaman. The other kids have, grudgingly, done so. Many a nickname has resulted from this specific title request. GMM, Grand Moo Moo, etc. My kids were on the road to calling her Grand Mama but then she changed her mind. She asked Carys to call her Grandma Carmen. So now that’s what she is. I think I’m going to have the kids just call her Grandma, since she IS their grandma. As much as she’s been a mother to me, she’s actively been a grandmother to them.

Dad was Granddadad to balance the earlier name. Now he’s just Grandad. I like that, as that’s what I called my grandfathers.

Cleaner

So the cleaner I arranged through a coupon site came in yesterday. She worked HARD. I have never seen my bathrooms that clean, even on theday we moved in they weren’t that clean. So, I want to have this as a regular thing in my life. It’s $30/hour plus HST, which isn’t that bad. Beloved Husband is trying to argue based on piddly things like cost. Hah. I shall have my way. I shall!